I am a crohnie whether i like it or not! My status was bestowed upon me in 1976, with no sign of tape cutting, cameras nor any paparazzi rushing to rummage through my toiletries. I have 'enjoyed' some difficult stressful times because of the 'award', equally i have also had so many enjoyable times on wards with other patients and nurses. I can't say whether i am a better person for being a crohnie, you only get one life! I know i am different to the one i expected to be, but that goes for anyone in life.
So many people talk about crohns not being them, thats true and a reality. It forces our hand down roads we would not necessarily have gone but it also helps us say ' i hate you with a passion, but you are not going to win'! We do experience things , endure pain and see sides to life that we would never have expected. Yet, despite our inner darkness and fears, we still go on, we enjoy, we share and love, we continue with life!
I am a crohnie, but i am a football supporter, using the term loosely, because my team struggles along doing silly things. Once a tiger always a tiger, come on you 'ull!
I am a political animal, i don't stand aside quietly letting others enjoy or endure without having a view, a strong view. Some won't agree with my politics, they are entitled to. I am a socialist. i believe in justice and equality in everything, healthcare and education,university and community care for the old. Socialism, to me, is about caring for the weakest, we could all be there at one stage in the future. So if you look away now, in the future no one will be there to look out for you.
I love literature and art, it inspires and opens up worlds i'll never go. It tells me about people and relationships, it enlightens me. it entertains me.
I adore music in most forms, without it i'm dead! Music is central to my being, often my saviour, my hope and optimism. Music floods through my ears and dominates me.
I am a crohnie but i don't believe in a superior being. When i die i am gone, i live on in the memory of others until i am only a distant memory.
I am a crohnie but i see the beauty in this world as well as the horror.I feel all of that in my heart and head.
I am a crohnie but i have many family members and friends who help me and me them. Without them i would be dragging along the bottom, aimlessly lost.
I am a crohnie but i can see the good in people and the bad, they could be crohnies or not. I am a crohnie but i am weak, vulnerable and imperfect in my character. I can give up and not risk things for fear of failure and rejection. I can attempt things and fail miserably, leaving good intentions or things undone.
I am a crohnie and i make mistakes, sometimes they hurt me, sometimes others get hurt. Nevertheless i am a crohnie, a crohnie is what i'll be all my life, but it will not be the legacy of my life. i have limits from crohns but all the things i have outlined are me,
John Peter Ingamells, born Kingston upon Hull 21 August 1961, music, care , books ,literature, art , family, friends, politics, Hull City AFC, and so on, this is who i am , i also happen to be a crohnie.
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